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Roberta is passionate about health innovations, disruptive change in developing countries and photography.
She is a lover of good food, travels, old movie theaters… Sandy got involved with the TMA shortly after his wife, Pauline, contracted TM in 1994 at the age of 35.
At the time of her onset, Pauline was a kindergarten teacher.
Sandy has been an officer and a board member of the TMA since its inception.
When she needs a “get-away”, Rebecca keeps it simple and enjoys a night in with friends, getting lost in a great book, or knitting with the finest yarn.
Over the past six years she has been working for a Dutch publishing firm as Marketing Manager and Executive Editor.
Rebecca is a mom of three, the youngest of whom was diagnosed with transverse myelitis at four months of age.
She worked for 18 years in the insurance/risk management industry in various roles, the last several dedicated to program management.
We support individuals living with rare neuroimmune diagnoses and their families, promote awareness to empower patients, families, clinicians and scientists, build a collaborative and dedicated clinical care network and help advance scientific understanding and research. Pauline fell to the floor with excruciating pain in her lower back and was immediately and completely paralyzed below her waist. We offer a support network between persons with these disorders through local support groups located throughout the world and through our partnership with Smart Patients, while also organizing annual quality of life programs such as family camps for children with these disorders and their families.
We support the post-residency training of clinicians committed to careers in academic medicine specializing in these disorders, provide grant support to academic Centers of Excellence and fund novel pilot research ideas.